Working together to acheive better outcomes for children with liver disease
Liver Kids Australia was founded in 2013 and works to raise awareness, support and funding for childhood liver disease in Australia.
Membership of Liver Kids means that you join the nationwide community of families seeking better recognition of childhood liver diseases so that we can see better diagnosis rates and outcomes for our children.
Membership is free and open to anyone who wishes to support our efforts.
Liver Kids is building a new website for 2020. While we work, please take the time to read our past blog posts and contact us if you have any questions about your child’s liver disease or would like to get in touch with other families around Australia.
We thought we might put this post together to give some tips on how to manage life at home with your immune-suppressed kid, or kid with a chronic illness during a time of great uncertainty and public health emergency. This…
Read More Parenting a Liver Kid in a pandemic (AKA are we homeschooling now!?)
The following text was presented by Rachel Vance at the Liver Kids AGM on 23 December 2019. 2019 has seen further consolidation of our aims for Liver Kids. We have continued our work in community awareness and focused on a…
The Liver Kids Family Fun Day in Sydney in late September was a fantastic and fun reminder of the benefits of being part of this community, connected by the unique experience that is childhood liver disease. First defined by the…
We recently had a 5-day hospital stay. It was the first one in 18 months and was at our local hospital, some 300kms from our liver specialists in Sydney. The experience reminded me how important it is to be a…
If you are the parent of a newly diagnosed Liver Kid, or you have a Liver Kid who has recently had a transplant you will have a lot of questions about your child’s future. You want to know whether they…
So first, a disclaimer: when my liver kid was diagnosed and had a transplant in 2007/2008 social media wasn’t really a thing. And I certainly didn’t have a smart phone in the hospital with me. This means that my experience…
Read More Childhood Liver Disease and Transplant in the Social Media Age
Liver Kids Australia Incorporated Liver Kids Australia Incorporated | ABN 18 508 705 739 | ARBN 165 083 330 